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European health data space

Briefing 11-12-2023

The COVID-19 pandemic shone a light on the growing importance of digital health technologies, both to enable remote medical care and to facilitate the health response by international, national and local authorities. At the same time, personal health data have been key for containment measures such as the EU digital COVID certificate. The Commission's May 2022 proposal for a regulation on a European health data space aims to improve individuals' access to and control of their electronic personal ...

Data act: Adoption in plenary

Lyhyesti 06-11-2023

In February 2022, the European Commission tabled a proposal for a regulation laying out harmonised rules on fair access to and use of data (the data act). During its first November 2023 plenary session, Parliament is set to vote on the political agreement reached in negotiations with the Council.

The European Union has taken a distinctive stance in facilitating the unrestricted movement of non-personal data, all the while upholding data privacy and security standards. However, there is still a requirement to ensure equitable conditions for data sharing. This research scrutinises the current legal framework within the EU, highlighting persistent obstacles and proposing potential strategies for implementation. This document was provided by the Policy Department for Economic, Scientific and ...

Algorithm-generated diets tailored to our individual needs could bring health benefits, but at the cost of having to share our most personal data, such as our DNA. The promises are many, but so are the open questions about interactions between genes, nutrients, environment and health, and the role of socioeconomic factors underlying food choices. Precision nutrition advice, services and products will need to be governed by a range of laws and policies, as they are at the intersection between food ...

In view of the rising frequency and sophistication of cyber-attacks hitting United States (US) targets and entailing widespread disruption of critical infrastructure, significant economic loss, and sensitive content and personal data leaks, the Biden administration has taken a series of steps to bolster the US cybersecurity posture since early 2021. Adding to President Biden's 2021 Executive Order on cybersecurity and 2022 Congressional legislation, the 2023 US National Cybersecurity Strategy lays ...

End-to-end encryption (E2EE) systems bring enhanced security advantages to private communications. Yet they also pose increased difficulties to law enforcement investigations. In the case of child sexual abuse (CSA) online, these systems hide data from children who are being abused or coerced into sexual abuse, leading to a failure to pursue these crimes. Reports of online grooming increased by 82 % in 2022. While E2EE might prevail for all its advantages, it is also necessary to protect young children ...

In December 2022, the Commission presented two proposals to revise the rules on the collection and transfer of advance passenger information (API) data – data collected by air carriers at check-in and sent to competent authorities in the country of destination prior to the flight's take-off. One of the proposals is for a new regulation on the collection and transfer of API data for the prevention, detection, investigation and prosecution of terrorist offences and serious crime. The proposal seeks ...

This study, commissioned by the European Parliament’s Policy Department for Citizens’ Rights and Constitutional Affairs at the request of the LIBE Committee, aims to analyse the European Commission’s proposals to reform the legal framework on the processing of Advance Passenger Information (API) data. The analysis takes stock of the current legal framework regarding the processing of travellers’ data. Then, it provides an outline of the Commission’s proposals, followed by an assessment of the fundamental ...

The data act

Briefing 15-05-2023

On 23 February 2022, the European Commission unveiled a proposal for an EU regulation – the data act – laying down harmonised rules on fair access to and use of data. The aim is to remove barriers to consumers and businesses' access to data, in a context in which the volume of data generated by humans and machines is increasing exponentially and becoming a critical factor for innovation by businesses (e.g. algorithm training) and by public authorities (e.g. shaping of smart cities). The proposed ...

This study, commissioned by the European Parliament’s Policy Department for Citizens’ Rights and Constitutional Affairs at the request of the FEMM Committee, considers the impact the lack of gender-disaggregated data has on women and vulnerable social groups, as consumers of products and services. It examines the areas of AI-applications, health, transport, finance and consumer goods, highlighting health and safety risks. Drawing on good practices it makes recommendations for the design of products ...